IFAPP webinar: Ethics in Data-driven Research
WMA Declaration of Taipei on Health Databases and Biobanks - Part 3: Opinions from Patients and the Public
The third webinar in the series of Ethics in Data-driven Research will be held on 23 March and is a collaborative initiative between JAPhMed, the Japanese National Member Association of IFAPP, a Japanese patient and public group, and IFAPP. The Bioethics Working Group of Ji4pe (the Japanese Institute for Public Engagement) has expressed the opinions of patients and the public towards the 2024 revision of the World Medical Association (WMA)'s “Declaration of Helsinki”. The WMA has started the revision process for the Declaration of Taipei (DoT) on Health Databases and Biobanks, with the planned adoption in October 2027. Consequently, IFAPP has organised a series of webinars inviting leaders from the WMA and a bioethicist from Taiwan to discuss the DoT. This third session invites a patient group to present their opinions on the DoT for raising discussions with experts of Pharmaceutical Medicine. Outcomes from this webinar will be bridged to the JAPhMed Annual Meeting in July, chaired by Dr Shinichi Nishiuma. This represents a valuable opportunity to share a global dialogue on the ethics of data-driven research related to the utilisation of real-world data and the development and application of artificial intelligence (AI)
You are kindly invited to join all of us for this excellent Webinar which will be a great opportunity for discussion, questions, comments, suggestions on March 23rd 2026 at 12:00 pm CET.